Saturday, January 9, 2010

Wow!

All I can say is WOW! I am speechless tonight. Grayson spent ALL day with a flat tummy, eating both eggs and grains, two things that have ALWAYS caused major irritation in the past. He had moments of irritation throughout the day, like any kid, but nothing that carried on beyond normal. He was able to regulate himself frequently, even at times with things got crazy. We had friends over and at one point we were swinging all of the kids around in blankets together, banging them into cushions, getting silly. In the past, he would have gotten wild and wouldn't have been able to calm himself down. Tonight, he was perfect, literally PERFECT! Then tonight, for almost an hour, he played by himself in his play room, building "sloops, dingies and motor boats" while listening to a Winnie the Pooh CD story. Then he came out, about a half an hour past his normal bedtime, which is actually pretty early, because he gets tired and emotional so early most nights, he sat between his father and I calmly while playing one Leapfrog game until bedtime. He went up to bed easily, without a fight, still smiling. All I can say is, I can live like this....it brings tears to my eyes to even consider having days and nights like this more often than not! If Dr. Herman can bring a reality like this to us, we will forever be indebted to him!

Tuesday, January 5, 2010

Quick update on BAX3000

Since the last post, we have challenged egg again twice and both times he did great! No aggression or hyperactivity like before. I will still watch for the 24+ hour reactions, but he used to react immediately after eating the egg every time, so this is promising! Today he had a small portion of eggs with breakfast, his tummy is totally flat still after noon and he is in a great mood, he's been flexible, playing with his brother very well, happy and playing on his own incredibly well! Dr. Jekyl and Mr. Hyde are nowhere to be found today!!

His little brother has always gotten eczema within 24 hours of dairy, all kinds, goat, sheep, everything. After their dairy treatment I gave him about a 1/4 of a container of goat's milk yogurt. His skin looked a little chapped so I was worried he was getting the eczema, but so far, days later, nothing!! He did have GI reactions, but I would expect to see that with the reintroduction of any protein after more than a year of avoidance. Think of a vegetarian going back to eating meat, they get cramps, bowel movement changes, etc.

So far they have been treated for egg, dairy and grains. We will go in tonight and Thursday night for additional treatments, I will keep you posted! We are all very excited about the possibilities...