Saturday, July 4, 2009

Seeing the WOWs, but what did it?

We are seeing AMAZING changes and we are even starting to see some consistency, things were all over the place before. I just can't put my finger on which was the major "wow-factor" or if it was a combination of things. Here is what we have done recently, and in this order:

1-Started Flagyl and Diflucan (based on yeast and bacteria markers in Organic Acid Test), also started SeriPhos for anxiety.

2-Added artichoke extract to the milk thistle we were already using to add more liver support (trying to address his whole body itchiness with either anxiety and/or liver stress as the cause)

3-Added OLE daily (200mg)

4-Started Nystatin once a day

5-A gland that has been raised on the side of his neck since he was a year old (and I mean VISIBLY raised) has gone down significantly, some days it's not even palpable! This is major.

6-Increased buffered Vit C to about 1000-1200mg a day to help with irritability (we had reduced it for oxalate issues and found him to become increasingly more irritable without the high levels of C)

7-Noticed his tongue was spotted and almost coated looking and pimples on rear (probably related to the die off from gut bug meds)

8-Stopped giving calcium (suspecting hypocalcemia), as a rial, just giving 360mg buffered mag oxide instead

9-Increased Nettle tea (about 1/2 cup a day) for calcium and possible allergies (we had used this before in smaller quantities)

10-Stopped first ten day course of Flagyl and Diflucan

11-Added 1/4cap of ACE (Adrenal Cortex Extract) for possible adrenal fatigue (we started seeing major changes about here, literally immediately)

12-Increased Milk Thistle by at least 200mg per day for itching, seems to have helped, but itching is still there throughout the day (still can't quite figure this out, but may be related to toxic release)

13-BMs have FINALLY gone from a very loose, strange consistency and foul smelling to NORMAL and not smelly, still undigested materials in them though (nuts, buckwheat groats and sunflower seeds seem to remain undigested)

14-OMG, as I was writing this, I noticed a crazy rash all over his upper torso! It looks like chicken pox! They are evenly spaced little pimples, he said they don't itch. They go from his collarbone and back of the neck to his mid-torso, they are not on his arms, legs or face....We just started the OLE 11 days ago (it is a top rated antiviral) and strangely, that coincides with when we saw the gland go down! The gland originally popped up right after his 12 month vaccinations, it came with what looked like a mild case of the chicken pox then too! But it also coincides with when we started the Nystatin, so it could also be from die-off of gut bugs. We haven't given him a bath, put any lotions or anything new on him either.

The point we are at now....verbal stims are almost non-existant except when he seems to need some OoO (3 drops), Biotin (20mg) and 1 No Fenol for yeast, we give this 2-3 times a day, we haven't had any meltdowns in DAYS, the anger is gone, the anxiety is non-existant, he is silly and talkative, almost hyper, but more appropriate kid stuff and he is listening well when we ask him to calm down, defiance has subsided. He must be feeling good. He goes to bed around 8pm and wakes no earlier than 8 or 8:30am, even 9-9:30am some days (and this is a child who used to wake a 5:45 before chelation!!). He is still itching, but now I can't tell if it's habit, a stim, yeast, related to allergies (he has no other signs of environmental allergies), or just plain die-off side effects. Between cleaning out the liver, killing off the gut bugs and chelating metals, he has a lot that could be coming from his pores. This is the first time in almost a year that we have had consistent days like this. We will be going onto another course of Flagyl and Diflucan. Once we go off the Flagyl, we will retest with another OAT (Organic Acid Test) which our DAN! might have actually gotten covered by insurance!!! WOO HOOOOOO!! (happy dance)

These have been the biggest WOWS we have had. In fact, yesterday we had a play date with two boys we haven't seen in ages, he was FABULOUS the whole time, playing nicely, sharing (wow), laughing. The play date we had before this last one was one disaster after another, he hit the boy, he cried, he lost his temper, screamed and had no patience the whole time, grabbed toys left and right, but this was just a few days into his meds so I am sure we were dealing with die-off.

No comments: