Oh the joys. Parasites and viruses.

I can't remember a time when we haven't had multiple experiences overlapping each other, graying the fine line that once existed between symptoms and results, cause and effect.  I hear myself relentlessly repeating, "it could have been, or it might be..., but I just don't know".

As you may know from reading my blog, Gavin has a parasite called Dientamoeba Fragilis, once labeled as a protozoa/amoeba, but more recently relabeled as a flagellate.  Lyme Disease is also a flagellate and as I am reading about the D. Fragilis, I am learning about the similarities they share, such as the many changing forms this parasite has....making it hard for any conclusive fact to be established about it's life cycle and stages.  One thing that has been determined is that it doesn't respond the same in a body as it does in a test tube or slide.  It isn't even known, if this parasite goes through a cyst change during it's unknown life cycle.  We don't know, if it hatches or reproduces with the full moon or new moon, or BOTH.  There is overwhelming evidence that these creatures cannot survive outside of the body, suggesting fluid transmittance or the use of another "host" to transmit them successfully from person to person.  It is most likely that they are hitching a ride on other parasites like B. Hominis or pinworm, etc.

I have a theory about how Gavin could have gotten infected with this one-celled parasite and perhaps has had it since birth (since all of his symptoms have been there since then).  When I was about 19 years old, I experienced a case of pinworm infestation which was ironically short-lived and didn't require treatment.  If D. Fragilis hitched a ride way back then, perhaps the pinworm situation resolved itself, but I could have been carrying around the D. Fragilis, asymptotically, which is not very uncommon.  Along comes this helpless baby boy who contracted my parasite in utero and never had a chance against infection from the very first breath he took.  He was immediately sensitive to foods like dairy and soy, he bloated early on, had torticolis (not sure if it's even related, but part of the big picture of his health), bowel movements varied from constipated to loose from the very first bite of "solid" foods, he had a seizure by the time he was a year old, and mood swings and control freak are understatements!  So here we are three years later, with possibly three years of damage from this GI-disturbing parasite.

What does all of this mean for families like ours who are trying tirelessly to rid themselves and/or their children of this monster?  It means experimenting with many treatment protocols.  We did multiple natural parasite cleanses from Humaworm and Artemesia to W-W from Pure Herbs and even higher doses of black walnut hull.  Although he always experienced some level of die-off, the symptoms never seemed to subside fully, he continued to have behaviors that waxed and waned with the moon cycles, very typical of parasite infestation.

Alinia was recommended by our DAN! doctor.  He gave us a script for just Gavin, 5 days worth.  So I did more research before even considering giving this RX to him.  I wanted to know more and had quite a bit of information already under my belt confirming that Alinia should only be used, if the doses are going to be high enough and used for long enough to rid him of this pesky intruder for good.  Just giving 5 days of meds could create a super-bug rather than killing it off, especially considering it travels with the ever-resistant B. Hominis which has a very long cyst cycle.  When a parasite is in it's cyst form, it is impossible to kill, so that means either knowing it's life cycle (which we don't) or treating for an entire month, plus a few days, to ensure hitting the exposed, non-cyst phase.

So as a last resort, we decided to attempt the Alinia, BUT only if we could have the longer dosing schedule and for the entire family since it is highly probable that this originated with one of us, and even if it didn't, we could pass it between us again post-treatment, all dependent on it's method of transition, but I don't like to take chances with our children and their health.  Our doctor was open to the treatment protocol I had found to be successful with multiple other families and ironically, our insurance actually covered it!!  Over $1000 per person worth of prescriptions, yippeeee!!

So here we are, on our third day of taking the Alinia (two days before the full moon), all of us.  I expected to be in a world of hurt, but surprisingly, it's been pleasant....well, hahahahaha, except for those around me, since I am very clearly effected by some form of die off, if you know what I mean (blushing).  Not very ladylike to say the least, teehehehe.  Gavin has had some gas as well, bowel movements were perfect for the first two days, but today we had what we have come to call Flagyl-poop.  Grayson was put on Flagyl years ago, for high levels of Clostridia (bad bacteria) and his BMs were hideous, they floated like chunks of cotton candy, attempting to stick together in what looks like it might have resembled a BM before exiting the body.  It is undeniably a die-off symptom.  Another interesting fact is that the Alinia also kills anaerobic bacteria like e.coli and clostridia, both of which we know Grayson has had, via stool samples.  This prescription has many modes of attacking our boy's ailments.  Lets just pray the results are permanent!

To add insult toinjury, two days into taking Alinia, poor Grayson contracted Coxsackie (Hand, Foot and Mouth Disease).  He developed a sudden high fever, lethargy, not hungry, sores in the back of his throat and he slept much of yesterday after  I loaded him up with 40,000IU of vit D3, OLE (which I confirmed wouldn't interact with the Alinia), Virastop and Lauracidin.  He woke without the fever, but was still very lethargic until bedtime, which he did not fight one bit.  He was ready.  Today, his mood is great, his eyes look bright, he is energetically playing with Gavin and he wants to eat, but his throat hurts too much to swallow anything solid. 

Amazingling (knock on wood), Gavin hasn't shown ANY signs of this illness....yet.  The contageous period can last weeks as the virus sheds, so I am praying Gavin's immune system is fighting it off successfully.  We are helping him with the natural anti-virals too.  In fact, Gavin is like a new child yesterday and today!  His mood swings are GONE, he is cooperative, compliant, happy and bouncy, his speech and ideas are more complex, he is playing nicely with Grayson (who is playing nicely back, HEAVEN for me), his belly was even flat for the first two days on the Alinia.  Today he has a little pouch after the strange BM, but still not as protruded as usual.  He's amazing, and I am relieved.  There is a glimmer of hope that perhaps this is Gavin's main health issue, and that perhaps we will have it resolved with treatment.

We just ordered follow-up hair tests with Doctor's Data, Inc. to see the progress we have made after a year of chelation with Gavin and two with Grayson.  The results should be in between tomorrow and Tuesday...I am so anxious!!  Maybe, just maybe, Gavin will still not meet Andy Cutler's counting rules and maybe, just maybe, this parasite will resolve the issues we were tying to mercury toxicity, and maybe, just maybe not having him vaccinated was the smartest thing we ever did!!  We'll see, one can hope, right?  Without hope, our days look dark.  I prefer to see the light at the end of the tunnel, even if my perception may be slightly off occasionally.  It can make the days in between seem less stressful.

This, that and the other

We've got a lot going on with both boys right now, since doing our last stool tests and changing the course of treatments.  Well, not changing per say, but adding to them.  In the process, I have seen die-off in both boys, always a good sign, but not always fun to live through.

Full moon
Since the full moon was February 18th (three days ago), we started Gavin's parasite cleanse on the 14th (four days before the full moon).  The theory behind this is that parasites hatch during a full moon and in order to attack all stages of their life cycle, you start four days before a full moon and continue the cleanse until four days before the next full moon.  This time, in addition to the Humaworm kid's cleanse, I decided to add in the Artmesia and a worm cleanse called W-W by Pure Herbs.  I joined him in that cleanse, just for the heck of it, even though I plan to do the family cleanse again in April.  I am not doing Humaworm, just the W-W, Artmesia and I am adding in a separate black walnut hull capsule.  I have a feeling I have a parasite issue for sure, so it can't hurt to join him in the fun.  Since starting that cleanse with him, we've had a whole slew of die-off symptoms.  Whenever he goes through severe die-off, he experiences a day or two of minimal talking.  His speech always seems to suffer on the worst days.  I'm not sure, if it's the quality of his speech or if it's his mood which makes him less interested in being social or reasonable, and just becomes quiet and demanding at the same time.  There is definitely a mood that follows his die-off, one of anger, frustration and impatience, plus he clings to me while whining most of the day.  It's like nothing can make him happy, he wants something, then he doesn't want it, then he wants it again.  The screaming over it all is the most frustrating part about it, for us parents.  It's extremely exhausting, to say the least.  Other symptoms we have seen with this particular cleanse are: severe sleep disturbances which involve an inability for him to fall asleep and stay asleep, he wakes crying every 45 minutes until he is able to get into a deep sleep, he's craving sugars, he was irritable in the first few days, and his bloating looked incredibly painful, because it started very high in the abdomen and was so tight that blue veins were pressed visibly against his skin.  Six days into the cleanse, he had watery diarrhea that burned his rear so badly it left painful welts all the way down his thighs.  He couldn't even bear the feeling of his clean diaper against his skin at bedtime.  On this same day, his urine smelled horrible, almost like he had a bowl movement in his diaper, even though he drinks TONS of water.  There was definitely some form of potent toxin in his urine! He has had a problem with sweating for a few months now, sweating while napping or sleeping at night and now is no exception.  He wakes with his pillow soaked behind him.  Since doing research on parasite infection, this is a red flag for parasites!  Chelation was supposed to start coincidentally ON the full moon, so we decided to avoid this round with him so as not to tax his liver too much.

Glyconutrients update
On a good note, we have been able to add the glyconutrients back in without a rash.  We started back on them with half a teaspoon dose.  It's been well over a week now and no rashes so far!  I think last time perhaps we increased his dose too fast for his body to handle, because when we had gotten to a teaspoon and a half, we noticed the rash during a round of chelation, which means, there was probably too much detox between the glycos and chelation, together.  I would also imagine that the combination of the glyconutrients, the active parasite infection and chelation was just too much for his little liver.  Rashes are often a sign that the liver is malfunctioning.

For me, the parasite cleanse resulted in significant joint pain in my left wrist. This only happened on the day of the full moon and it was really painful.  The aches would come and go, throbbing deep in the joint.  One of my ankles felt like it hurt a little too, but it didn't last as long as the wrist hurt all day.  I experienced some itching (yes, rectal, nice huh?) and today after my second dose, I have a strange tightness in my chest that doesn't resolve with coughing.  I have also experienced alternating bowel movements like Gavin too.

Thyroid and iodine
My hair test suggested possible thyroid problems, so I am experimenting with Lugol's 2% iodine daily and since doing a patch test, I am increasing the dose.  I noticed that increasing the dose makes me feel better.  When you do an iodine patch test, the patch of brown iodine on your skin should remain there for 24 hours, if you aren't deficient.  If it disappears sooner, you are deficient.  My patch was gone in less than 9 hours!  So I will continue to increase the drops until the water tastes metalic to me, then I will back off and maintain at that dose.  Then I can repeat the patch test to see, if that dose is offering enough iodine to make my body happy.  When that happens, the patch should remain on my skin for at least 24 hours.  I am now also testing the boys with the patch test, today in fact!  Iodine is known to help with parasites, fungus and bacterial infections, so it's very possible they are deficient too.  I would guess that I could have passed on any of my own deficiencies to them, resulting in many of the issues we are battling now.

UPDATE - Within 5 hours, Gavin's iodine patch is gone!  I'd say he's deficient.  Grayson's is still going strong.  I guess tomorrow I will add iodine for Gavin and see how it changes things.  One thing I have learned in the interim is that adding iodine addresses parasites....interesting.

Attack of the antivirals
With Grayson, we decided to hit him hard with the natural antivirals and there is clearly a reaction happening.  I'm not sure, if the term die-off is appropriate in this situation, but it sure appears that way.  He was already taking high doses of olive leaf extract, and we added in monolaurin and lysine.  With the addition of these supplements, he is rubbing his face, nose and ears all day.  It doesn't seem to be bothering him.  He used to have more of a swatting action, but lately, it's a backhand rub on the cheeks, nose, across the mouth and forehead and he rubs the back of his head behind his ears a lot, sometimes grabbing and bending his ears.  He looks so funny when he has this chronic itching, because his hair is always sticking up all over from rubbing his head!  hahaha  In the past I would have thought this was a tic, but it's not a consistent motion (not sure, if that even matters) and he says he is itchy.  He is even putting the palm of his hand over his ear and pressing/rubbing, like you would if you had a deep inner ear itch. I've noticed that since I increased the monolaurin, he is now nasally too.  His tolerance of the monolaurin is low, we just increased his dose to three little pellets, when normally a scoop is used.  I am wondering, if this means he has a problem with Rubella, since I have heard that monolaurin is the natural antiviral of choice for rubella infections.  Oddly, even with these strange behaviors, his mood has been phenomonal!  In the very beginning, his moods were like the wind, but that passed quickly.  We've even increased his DMSA this round with no ill effects, amazingly!  In the past, just a tiny increase would send him into meltdown misery!  Not this time.  He's finally on a full 5mg dose of DMSA.  Still nowhere near his maximum dose since he could go as high as 20mg per dose safely!  I still feel like we are really making progress.  His more consistent cooperative moods make parenting a breeze!  This is something I haven't been able to say in years.  I am proud to say that I am enjoying these days immensely!

Metametrix DNA microbiology test results

I am experiencing a lot of emotions about the results of the boys' stool tests.  One one hand, Grayson's results look great!  The test is perfect, he is colonizing the good bacteria (not as high as he should, but better than the last test which had none of some good bacteria), has no significant bad bacteria or yeast and no parasites.  As wonderful as it sounds, yes we are clearing things up, chelation is working, and the antimicrobials are working, there is still something going on.

Yeast, bacteria or virus?
For those of you who have been following our story, you know that we had huge issues with Clostridia and yeast in the past, along with symptoms of regression recently.  So if they aren't yeast and Clostridia, what are they, right?  We have always thought Grayson was a "viral kid", meaning that he would have high levels of live viruses residing in his gut.  This was evident by his lack of illnesses when he was two and now his frequent viruses, and it was confirmed when I added OLE (olive leaf extract) to his daily routine.  Ten days into treatment, he broke out in a viral rash that looked like the chicken pox, but less severe.  It was all over his truck and neck for days.  This is a common event for those who are treating for latent viruses.  So now all this stool test tells me is that I was right, we need to focus on attacking the viruses, although, we don't know which ones we are aiming for.  I can guess that being he was given four live virus vaccines in one visit, before all of this started, we should probably consider the measles, mumps, rubella and chickenpox, at minimum.  In fact, when we did the vaccine treatment with the BioVeda BAX3000, he had a significant reaction that started right in the office after the treatment.  He got really hot, flush and itchy and immediately broke out in yet another rash!  Since getting the results of the stool test, I added Monolaurin back into his routine and just two teeny tiny pellets (they are usually given as a scoop of pellets) send him reeling in emotion, impatience, itching, and head swatting comes back along with some minor sensory symptoms.  Viral die off can cause a flare in yeast, so it wouldn't be uncommon to see a combination of viral and yeast symptoms.  I can tell that the addition of the Monolaurin is doing something to him, because he wakes in the morning in a perfect mood, and then after his dose, the symptoms begin to rise.  Using some PectaSol C calms down the itching at least.

The monster within
Ok, now for the interesting one.  Gavin's test found a parasite called Dientamoeba Fragilis, also known as DF.  (sigh) It's a flagellate protozoan parasite.  Sounds nice, doesn't it?  I hate to say it, because I probably should have done this test with Gavin sooner, but I had a feeling part of his problems were parasitic.  He never gained weight well (always under the growth chart), he eats more than we do some days, he's hungry constantly, always had the red anal ring, severe bloating (especially lately), food sensitivities, eczema, recently he started saying he was having pain in his upper intestinal area and his BMs have always alternated between constipation and loose.  I always said his issues were only GI related and ironically, this parasite resides in the large intestines reeking havoc on the GI system. Now take a look at how similar the list of symptoms from emedicine are compared to what we were experiencing:

In chronic infection, duration of symptoms is greater than 1-2 months. Abdominal pain is the more common complaint. In children, pain varies with regards to location, duration, and character.

Other GI complaints include the following:

• Anorexia
• Weight loss
• Nausea
• Vomiting
• Bloating
• Flatulence
• Alternating constipation and diarrhea

Nonintestinal complaints include the following:

• Headache
• Fever
• Malaise
• Fatigue
• Irritability
• Weakness
• Pruritus
• Urticaria

Other sites go on to say that chronic infections cause food allergies/sensitivities, especially to wheat and milk!  Another symptom noticed by those with confirmed cases is green BMs with undigested food.  Gavin requires the use of enzymes in order to prevent the undigested food from showing up.  He has always had a random green stool here and there  and now that I have started treatment for this parasite, just this morning his stool was green!  We did the family parasite cleanse only 4 months ago, but we avoided wormwood (artmesia) so I decided to add that in this time.  He is most definitely reacting to this treatment with strong emotional frustrations, his tags in his clothes are bothering him suddenly, severe bloating and he is very needy.  He's speaking less than previously too, or perhaps it's just more to the point with his unfavorable mood.  I hope we are on the right track to dealing with this parasite, because I have read such conflicting information about effective treatment protocols!  It appears to be a very hard parasite to eradicate.  I'm not surprised though, I heard the same thing about the Clostridia in Grayson.  We are combining the anti-parasite treatment with the biofilm protocol (without EDTA) to ensure that the anti-parasitics reach the bugs.  I've also read great things about a product called W-W by Pure Herbs.  I may do what we are doing now for a little over a month (today happens to be four days before the next full moon, so it was perfect timing to start treating!) and then I will repeat a treatment every month with the W-W which is recommended by using it four days before the full moon until four days after the full moon, for about 9 months.  Contrary to this treatment though, I have also read that a prescription called Alinia was successful at eradicating it in another mother/child that were infected with it.  But this mother said it was absolutely imperative to use it in high doses for a long time (35+ days).  So I think I will try the natural route first, retest and then consider the Alinia, if this doesn't work.  I am sure I will see a decrease in symptoms, if this parasite is killed off.

On a good note, already since using the biofilm protocol with the Artmesia and black walnut hull all together for the first time today, his belly is less bloated and his mood is getting better.  We also had a green stool this morning, wondering if that signifies die-off....there is much to research!