Showing posts with label biofilm. Show all posts
Showing posts with label biofilm. Show all posts

Monday, February 14, 2011

Metametrix DNA microbiology test results

I am experiencing a lot of emotions about the results of the boys' stool tests.  One one hand, Grayson's results look great!  The test is perfect, he is colonizing the good bacteria (not as high as he should, but better than the last test which had none of some good bacteria), has no significant bad bacteria or yeast and no parasites.  As wonderful as it sounds, yes we are clearing things up, chelation is working, and the antimicrobials are working, there is still something going on.

Yeast, bacteria or virus?
For those of you who have been following our story, you know that we had huge issues with Clostridia and yeast in the past, along with symptoms of regression recently.  So if they aren't yeast and Clostridia, what are they, right?  We have always thought Grayson was a "viral kid", meaning that he would have high levels of live viruses residing in his gut.  This was evident by his lack of illnesses when he was two and now his frequent viruses, and it was confirmed when I added OLE (olive leaf extract) to his daily routine.  Ten days into treatment, he broke out in a viral rash that looked like the chicken pox, but less severe.  It was all over his truck and neck for days.  This is a common event for those who are treating for latent viruses.  So now all this stool test tells me is that I was right, we need to focus on attacking the viruses, although, we don't know which ones we are aiming for.  I can guess that being he was given four live virus vaccines in one visit, before all of this started, we should probably consider the measles, mumps, rubella and chickenpox, at minimum.  In fact, when we did the vaccine treatment with the BioVeda BAX3000, he had a significant reaction that started right in the office after the treatment.  He got really hot, flush and itchy and immediately broke out in yet another rash!  Since getting the results of the stool test, I added Monolaurin back into his routine and just two teeny tiny pellets (they are usually given as a scoop of pellets) send him reeling in emotion, impatience, itching, and head swatting comes back along with some minor sensory symptoms.  Viral die off can cause a flare in yeast, so it wouldn't be uncommon to see a combination of viral and yeast symptoms.  I can tell that the addition of the Monolaurin is doing something to him, because he wakes in the morning in a perfect mood, and then after his dose, the symptoms begin to rise.  Using some PectaSol C calms down the itching at least.

The monster within
Ok, now for the interesting one.  Gavin's test found a parasite called Dientamoeba Fragilis, also known as DF.  (sigh) It's a flagellate protozoan parasite.  Sounds nice, doesn't it?  I hate to say it, because I probably should have done this test with Gavin sooner, but I had a feeling part of his problems were parasitic.  He never gained weight well (always under the growth chart), he eats more than we do some days, he's hungry constantly, always had the red anal ring, severe bloating (especially lately), food sensitivities, eczema, recently he started saying he was having pain in his upper intestinal area and his BMs have always alternated between constipation and loose.  I always said his issues were only GI related and ironically, this parasite resides in the large intestines reeking havoc on the GI system. Now take a look at how similar the list of symptoms from emedicine are compared to what we were experiencing:

In chronic infection, duration of symptoms is greater than 1-2 months. Abdominal pain is the more common complaint. In children, pain varies with regards to location, duration, and character.

Other GI complaints include the following:
  • Anorexia
  • Weight loss
  • Nausea
  • Vomiting
  • Bloating
  • Flatulence
  • Alternating constipation and diarrhea
Nonintestinal complaints include the following:
  • Headache
  • Fever
  • Malaise
  • Fatigue
  • Irritability
  • Weakness
  • Pruritus
  • Urticaria

Other sites go on to say that chronic infections cause food allergies/sensitivities, especially to wheat and milk!  Another symptom noticed by those with confirmed cases is green BMs with undigested food.  Gavin requires the use of enzymes in order to prevent the undigested food from showing up.  He has always had a random green stool here and there  and now that I have started treatment for this parasite, just this morning his stool was green!  We did the family parasite cleanse only 4 months ago, but we avoided wormwood (artmesia) so I decided to add that in this time.  He is most definitely reacting to this treatment with strong emotional frustrations, his tags in his clothes are bothering him suddenly, severe bloating and he is very needy.  He's speaking less than previously too, or perhaps it's just more to the point with his unfavorable mood.  I hope we are on the right track to dealing with this parasite, because I have read such conflicting information about effective treatment protocols!  It appears to be a very hard parasite to eradicate.  I'm not surprised though, I heard the same thing about the Clostridia in Grayson.  We are combining the anti-parasite treatment with the biofilm protocol (without EDTA) to ensure that the anti-parasitics reach the bugs.  I've also read great things about a product called W-W by Pure Herbs.  I may do what we are doing now for a little over a month (today happens to be four days before the next full moon, so it was perfect timing to start treating!) and then I will repeat a treatment every month with the W-W which is recommended by using it four days before the full moon until four days after the full moon, for about 9 months.  Contrary to this treatment though, I have also read that a prescription called Alinia was successful at eradicating it in another mother/child that were infected with it.  But this mother said it was absolutely imperative to use it in high doses for a long time (35+ days).  So I think I will try the natural route first, retest and then consider the Alinia, if this doesn't work.  I am sure I will see a decrease in symptoms, if this parasite is killed off.

On a good note, already since using the biofilm protocol with the Artmesia and black walnut hull all together for the first time today, his belly is less bloated and his mood is getting better.  We also had a green stool this morning, wondering if that signifies die-off....there is much to research!

Tuesday, November 24, 2009

Biofilm

This is probably a new term for you so I will edu-ma-cate you first. Biofilm is a polyssacharide matrix that microbes develop to protect themselves. It allows them to survive in a less than optimal environment, AKA - a healthy body? These pests are smarter than us and always will be as long as we continue to use medical prescriptions to fight them. Biofilm is a sticky film that allows them to remain undetected by the body. So while we are doing all of our treatments trying to kill these little suckers, we see some progress, but then stopping the treatments proves to only result in yet another build up of the symptoms yet again.  So we know we probably have a biofilm issue at hand. Since the Flagyl antibiotics only addressed our bacteria issues for about two months, if even, both times we used it, we knew we had something more deep seated to deal with. This stuff has probably been setting up residency for a few years! We knew it was time for the BIG GUNS!! Hence, the biofilm protocol!

 The first step of this process is a few specific enzymes that poke holes in the biofilm by breaking down their cell walls which then allows the following treatments (natural antimicrobials/antivirals) to get in there and kill them while they think they are hiding. It's a process that takes time (months), but usually results in great long-lasting benefits....providing we are also removing the metals at play too! These things go hand in hand, microbes and metals protect and benefit each other.

Once we open the biofilm, we are essentially reactivating the body, because previous to this step, it was actually unaware of it's very well hidden intruders. This can result in a plethora of symptoms that can range from flu-like to stimmy and irritated. It's basically BIG die-off and the process requires a good mop-up step to usher out the toxins (like having a dead creature in your basement, eeeew, get it out, right? It's toxic), otherwise they will overwhelm the body (and the liver) and become neurotoxic in the process. So here is our daily routine now:

I am only doing the biofilm protocol once a day right now, but after 3-6 weeks, we will consider a second dosing schedule in the day. So essentially what I am doing is using the biofilm in the morning hours (getting the empty stomach is easier then) and then I continue with the dosing schedule we were using pre-biofilm in the later parts of the day, because, if we go more than 3 hours without dosing something, the yeast and bacteria start right back up. Then at bedtime we give hefty doses of probiotics to rebuild the good flora. More good crowds out the bad!

The "killers" as I like to call them (antimicrobials/antivirals) may be more than some kids can handle, but as I mentioned before, we get severe overgrowth pretty fast, otherwise. So while the biofilm is in place, I am hitting this stuff pretty hard and seeing results! Previously, if we went more than 6 weeks without Flagyl, we saw MAJOR bacterial symptoms (aggression, hitting, throwing, defiance, spacey interchanged with hyper, negative attitude all day, and a lot of emotions and crying).

We do a bit of rotation, because of leaky gut, so the food supplements along with anything that contains coconut (a #1 on his IgG panel) is rotated on a four day rotation.

1 - I keep the bottles of Klaire Labs Interfase (Important, NOT Interfase Plus, it has EDTA in it which is unsafe for mercury toxic people) and ViraStop (you could also use Lumbrokinase here which is GREAT for Lyme) with a cup of water on my nightstand since he comes to my room first thing when he wakes. This allows me to start the pre-food dosing asap. I give him 1 ViraStop and 2 Interfase caps on an empty stomach.

2 - When we get downstairs, I give him either his home made electrolyte solution or an apple cider vinegar drink made with warm water, baking soda and honey (depending on our rotation day). He drinks these right down on an empty stomach and looks forward to both of them!

3 - 30-45 min (I use the stove timer, lol) after the Interfase and ViraStop, I dose our "killers" (4-5 drops Bio-Alternatives OoO, 3 droppers full of NOW Foods OLE which is 300mg, 15-20mg Biotin, 3-4 drops GSE and/or Nystatin depending on yeast symptoms, and then we rotate either a full cap of Pharmax Caprylic Acid or a 1/3 of a cap of Natures Way Uva Ursi - this is a new add in for us so we are starting slow). We LOVE the Caprylic Acid and see a difference in him when using that on his rotation days.  A quick note about GSE here - In the two years since I've written this blog, we have learned that a few drops of GSE wasn't our ideal dose.  He is now on two Nutribiotic tablets (125mg each) PLUS 10 more drops.  I wish I tried this sooner, but working up slowly is also important for the sake of severe die off and liver tolerance.

4 - He takes digestion enzymes and two HCI (hydrochloric acid capsules), eats and has his supplements then I set the timer to an hour but anywhere between 1-2 hours is good.

5 - 1-2 hours after supplements and "killers", I give two PectaSol C by EcoNugenics to mop up. This is proven to also move metals. It's a Modified Citrus Pectin which interestingly our son does fine with considering all citrus was elevated on his IgG. You need a dr to order, but all I did was call and tell them that Dr. Woeller of AutismActionPlan.org (I am a member) suggested them and they let me order. It's expensive, $69 a bottle, but there are 270 capsules in a bottle. Everything we give seems to be expensive, ugh! I could be driving a brand new Mercedes, I tell ya!! Not even kidding...You can also use good old activated charcoal here though.

6 - I wait another 1-2 hours to start dosing our "killers" again and then we do that at 3 hour intervals so usually that works out to around noon or 1pm and again at 3-4pm. This is perfect for his school schedule this year, but I am seriously fretting about him in all day kindergarten next year.

7 - At dinner he has 4-6 ounces of kombucha (a fermented iced tea drink with enzymes, probiotics and B vitamins, it's the only way he tolerates the B vitamins!) and at bedtime, 3 Culturelle and 3 New Beginnings Probiotic Support which contains a good amount of Sacc B in addition to a broad spectrum (no-strep strain) dairy-free probiotic. We are doing well with these lately, I can tell by the way he wakes up the next morning. He is calm, happy and compliant.

So that is it, our routine, which now seems to be working pretty well. Sometimes we need to up our yeast protocol, especially when we are on a chelation round, but he responds well and quickly. We also do the epsom salt baths a few times a week, and I have recently added in a bentonite clay bath here and there to assist with the toxin die off. He gets various supplements three times a day as part of all of this, as well.

We had massive die off initially, probably for the first 5-7 days, but that seems to have leveled out, thankfully. I thought I would really lose it, but I stuck with the protocol, increased the PectaSol mop up a bit occasionally and sure enough, he has leveled out nicely, phew!! It's been a while since we have had a good constant without Flagyl. We still see some yeasty signs, as I mentioned, so we are working that out too. He's getting "bored" with school and I don't know, if that is related, but the teacher has been made aware so after the Holiday break, I hope he gets back into the swing of things. I have to say that this is the longest we have gone (8 full weeks) after ending the Flagyl, without major bacterial signs building back up!

I might also add that when I started this protocol with our 17 month old (who also shows signs of yeast and bacterial infections) we had the oddest BM and since he is still in diapers, I got a nice eyeful of a small compact ball of mucus and sticky green something-or-other, eeew! I have read that the biofilm is clear so I am not sure what the compact green stuff was, but it was all intertwined and weird, to say the least. Dr. Woeller suggested that it could just be a plug that was moved out by the protocol. It didn't even connect when I was changing the diaper, instead, at 5am the next morning my eyes popped open and I thought, "I KNOW WHAT THAT WAS..." AKA - biofilm response! Onward...