As you might have read in my last entry, we've all been doing great on the Alinia (anti-parasitic) for the past two weeks. Well now, the tables are turning and things are changing. The new moon is in three days. Gavin had been reacting to the new moon (always starting the week before the new moon), progressively worse with each passing month. So naturally, I was curious to see what would happen while we were on the Alinia.
Three days from the new moon today
As the new moon approaches, we have sudden changes in Gavin and it looks like I will have to put my foot squarely in my mouth as I tell you that severe the die off has set in! He went from being calm, happy and having fairly decent BMs to being in pain constantly, grabbing his belly and crying that he doesn't feel good and the BMs....wow. A few days ago they began to change, I was noticing they were full of black specs, like pepper, and the consistency was slowly becoming less formed. Black specs are often associated with bad bacteria. This is from the EnzymeStuff website:
"If you start any supplement that might create looser stools, temporary diarrhea, or die-off of yeast or bacteria (like an antibiotic, probiotic, digestive enzymes, antifungal, laxative, etc), you might see dark or black flecks in stool during this 'cleaning out' period. Certain types of adverse bacteria in the colon can produce dark residues and this is getting cleaned out."
I have also read about people who have seen this while doing colon and parasite cleanses. Then two days ago, he began to have explosive diarrhea which has progressed to water and now today, they are burning his skin pretty significantly. The colors have even been changing, progressively getting lighter so I am increasing his liver support. The first couple of days with the watery BMs, his mood was horrendous, today his mood is better, but the stool is still awful and his belly hurts. I was helping him eat a small lunch today and he had just barely finished swallowing his first bite when I distinctly heard his tummy grumble in distress, out loud. Needless to say, his little meal was briskly followed by a visit to the potty. This description of his parasite, from Humaworm, just about sums up his die-off symptoms right now:
"DIENTAMOEBA FRAGILIS - this parasite lives in the large intestines - it is found worldwide. Symptoms include diarrhea, stomach pain and cramping, loss of appetite, weight loss, nausea and fatigue. This parasite infection stays in the large intestine - it does not spread to other parts of the body."
Fluids, fluids and more fluids
On a good note, he's drinking well, and a lot. I've made him an electrolyte drink with coconut water, filtered water, salt and baking soda which he guzzles no problem. I think he has single-handedly downed 32 ounces already just today! He is also still drinking his camel milk and kefir. The milk will offer him the nutrition he's lacking from not eating very much. As long as he keeps the fluids going through him, I feel ok with his condition. His skin is slightly pale, but looks good and supple, cheeks still holding some color, and even though he obviously feels yucky, he is still responding with humor when we interact and play. It seems that the effects today are purely gastrointestinal and that would make sense with parasite die-off.
And what about mommy?
As we ended our last round of chelation, I began to feel nausea that I initially chalked up to the round, but it lasted days and was neck and neck with exhaustion that just won't go away. I've also had much more severe and painful acne and the bulk of it is around my hairline, which I have read can be a symptom of parasites. Today I woke with very achy, painful upper thigh and shoulder muscles and I did not do any manual labor in the past day or two. So it appears that even I am slightly reacting to this phase on the Alinia which would suggest that it's probable that I have the same parasite. This could mean that my assessment of where Gavin contracted it is correct.....in utero? How very disturbing! If only I knew then, what I know now.
This is from the Humaworm site, interesting how the sore muscles are the exact muscles I am feeling pain in!
Parasites can travel to almost all soft tissue including in the joints and muscles where they cause cysts and inflammation that is commonly mistaken as arthritis and muscle pain. The toxins from parasites can also pool in the joints and in muscle tissue causing:
Muscle Pain
Joint Pain
Muscle Cramping
Numbness of the Hands and/or Feet
Heart Pain
Pain in The Navel
Pain in the Back, Thighs or Shoulders
Arthritic Pains
Fast Heartbeat
Uh oh duty calls, quite literally, I think he might have had a blow out during his nap, in his sleep, he's crying now, I better go.
Being mom to a child with several food sensitivities identifies me with a new world, one of caution and education. I never knew reading labels and ingredients could become second nature, who knew that artificial colors and additives could create time bombs, that wheat and dairy could turn a child into a tantrum whirlwind...learn about our journey into the new world of food sensitivities and what they mean. THIS WAS ONLY THE BEGINNING!
Friday, August 26, 2011
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8 comments:
Just found your blog, very interesting. My son has many of the same traits as your older son. The SCD diet has been a miracle for us. It's nice to find another mom interested in many of the same things.
Hi Mrs. Ed, welcome to my life, lol. Probably not so different from yours! For us, the LOD was the kicker! It seems like once you get into a grove, it's so hard to even consider anything else. Have you looked into camel's milk yet? You can do a search on my blog for that. ;)
I am amazed with your blog and our similarities. We are so excited to try the Alinia...anything since this post with the d. fragilis? thanks!
We have not retested to find out, if the Alinia did the trick. I would still like to, but balancing all the costs is such a challenge! We will retest at some point when we feel it is necessary. =)
I would love to know if the Alinia did the trick. Our whole family has blasto and d fragilis. We have a doc who is willing to prescribe the treatment (alinia 30 days) but we have 7 people to treat (so over $5,000) and would love to hear that you have results. I just found your blog today and I can tell that I will have some reading to do for the next few months or so. You have the heart and mind of a researcher!
beth,
Unfortunately, we never did post-treatment testing and now we are treating for other parasites, so we don't know if the Alinia did the trick. =( You should also check out BadBugs.org for more info on those two parasites!
Wow! thanks for getting back to me. What is your gut feeling? Do you think it really helped? Do you think the parasite is gone? I know it's hard to tell with all the different things you guys have going on.
We started 2 days ago on the Alinia. So far, so good. No one is terribly sick.
I've read the badbugs site for the last 3 years. Seems like Alinia is the safest choice for little ones (and the baby is not quite 1 and a half yet). I've got all my eggs in this one basket and I'm hopeful. I've read a great deal about iodoquinol (yodoxin) that seems mostly positive as far as killing the d fragilis, but it's not very safe (and has some pretty bad side effects).
Dr. Borody (in Australia) is claiming a cure- but it's a triple drug regimen and I don't think it's good for kids. Oh well, I'll pop back in here end of November and tell you our results. I'm going to test for sure!
That is the same reason we chose the Alinia, but for a much longer duration. Our son was two when we found the D. Fragilis. We were hoping for the best! My children still have issues stemming from parasites, but I don't know, if the D. Fragilis is still around. I also suspected we weren't only dealing with D. Fragilis since it tends to travel with many other parasites. Sure enough, we are seeing more improvement by doing more.
Good luck and yes, please keep us posted!!
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