tag:blogger.com,1999:blog-3870724569005621487.post1364343208240145859..comments2024-02-23T03:46:05.941-05:00Comments on You are what you eat!: Why does camel milk work?Jessicahttp://www.blogger.com/profile/01900390957087776716noreply@blogger.comBlogger27125tag:blogger.com,1999:blog-3870724569005621487.post-34918505288900158482013-01-29T18:41:48.773-05:002013-01-29T18:41:48.773-05:00We never boiled the camel milk. We only gave it c...We never boiled the camel milk. We only gave it cold.<br /><br />JessicaJessicahttps://www.blogger.com/profile/01900390957087776716noreply@blogger.comtag:blogger.com,1999:blog-3870724569005621487.post-28075846617877737312013-01-29T13:45:11.300-05:002013-01-29T13:45:11.300-05:00Hi,My son is 5 year old,has autism,now is it 1 wee...Hi,My son is 5 year old,has autism,now is it 1 week on the camel milk but I m not sure-I want ask you,how you give our child camel milk,cold or hot,you boil milk,please let me know thank you.annanoreply@blogger.comtag:blogger.com,1999:blog-3870724569005621487.post-41217716919748357602012-05-08T12:27:31.161-04:002012-05-08T12:27:31.161-04:00Yes, the FRAs are completely different from the MT...Yes, the FRAs are completely different from the MTHFR mutations. A person can have one without the other, but if a person is an MTHFR, I would be extra cautious about the possibility of the FRAs, because it's like having a double-whammy folate problem. B-12 deficiency is another issue associated with the MTHFR gene mutations, and it's well-known that many of our kids have problems processing B12. It tends to be high in their plasma (blood), but low in the cells. Is this because their cells are being occupied by oxalates, pathogens and other nasties...? I don't know, but it certainly makes some sense. <br /><br />Thank you for reading!<br /><br />JessicaJessicahttps://www.blogger.com/profile/01900390957087776716noreply@blogger.comtag:blogger.com,1999:blog-3870724569005621487.post-25621737543033966532012-05-08T00:02:00.864-04:002012-05-08T00:02:00.864-04:00Are folate receptor antibodies a completely differ...Are folate receptor antibodies a completely different condition than the MTHFR polymorphism that is associated with autism (among other things)? I guess I will have to look into it. So excited to find your blog, by-the-way. It's fabulous![M]https://www.blogger.com/profile/10905959631840814165noreply@blogger.comtag:blogger.com,1999:blog-3870724569005621487.post-78504441204102753202012-05-05T15:55:14.717-04:002012-05-05T15:55:14.717-04:00Hi Shea,
We have not yet folate tested. We have m...Hi Shea,<br />We have not yet folate tested. We have many other costs prohibiting us from having this done anytime soon, so for the time being we are off the camel milk. I would like to use it again in the future though. <br /><br />You can reach me via e-mail at luckylot@ptd.net. Look forward to hearing from you!Jessicahttps://www.blogger.com/profile/01900390957087776716noreply@blogger.comtag:blogger.com,1999:blog-3870724569005621487.post-35654277879728393622012-05-01T15:00:36.842-04:002012-05-01T15:00:36.842-04:00Hi Jessica, Was wondering were you stood with the ...Hi Jessica, Was wondering were you stood with the folate testing you were waiting on and if you thought you were gonna go back on the camel milk? We are very interested..still in trying camel milk at some point this summer..we just unsure how to figure out a safe place and how you go about it. FB is not so easy for me to get on to .. is there a way one might chat with you? or something? thanks again, DonnaSheahttps://www.blogger.com/profile/13948422515581541173noreply@blogger.comtag:blogger.com,1999:blog-3870724569005621487.post-80532642520422398192012-03-24T09:00:28.634-04:002012-03-24T09:00:28.634-04:00Jessica,
Thank you so much ..for your input!! Gre...Jessica, <br />Thank you so much ..for your input!! Greatly appreciate it~ Will certainly look more into it. I do worry that we will yet again try something new like the Leucvorin, and then have the positives then go away..like other things.Donnanoreply@blogger.comtag:blogger.com,1999:blog-3870724569005621487.post-65140812042374946772012-03-20T11:07:37.080-04:002012-03-20T11:07:37.080-04:00There is a LOT of talk about the FRA (folate recep...There is a LOT of talk about the FRA (folate receptor antibodies) issue on the HEaling with Camel Milk facebook group, you could do a search there and come up with a lot of information. Many of the parents are going through this right now. It is my understanding that a child who tests positive should not do any dairy though, whether a person is treating or not. I am also reading that some kids start out doing great on the Leucvorin, but then crash after a while. I don't know what the answer is though. It would be worth getting in on those conversations, if you are considering the milk and/or have the FRAs to take into account.Jessicahttps://www.blogger.com/profile/01900390957087776716noreply@blogger.comtag:blogger.com,1999:blog-3870724569005621487.post-87086577724005601312012-03-20T07:46:32.494-04:002012-03-20T07:46:32.494-04:00Hello Jessica! ahh... no thats ok...it just means...Hello Jessica! ahh... no thats ok...it just means that we have to do one or the other at a time is all. our doctor warned us that if we put her back on colostrum we can not do it while on that treatment but can when we are not on it. (we have not started the LEUCOVORIN trial yet) so glad i can keep that in mind. of course still 100% interested in the camel milk ALOT and don't know how you find a reputable place that is safe just from looking at a web site.Donnanoreply@blogger.comtag:blogger.com,1999:blog-3870724569005621487.post-61464222035115148932012-03-19T21:20:23.150-04:002012-03-19T21:20:23.150-04:00If your daughter is positive for blocking antibodi...If your daughter is positive for blocking antibodies, I don't think she should be drinking any dairy, including camel milk, unfortunately. I'm sorry to be the bearer of bad news. =(Jessicahttps://www.blogger.com/profile/01900390957087776716noreply@blogger.comtag:blogger.com,1999:blog-3870724569005621487.post-63695383629699053932012-03-19T20:01:10.867-04:002012-03-19T20:01:10.867-04:00Hi jessica,
dah..i realized FB later meant faceb...Hi jessica, <br /><br />dah..i realized FB later meant facebook...and i don't normally do that. When you said "if you don't have any folate deficiency's you will go back on the milk..does that mean you should not be on both at the same time? I do know your not sopose to be on any milk while going threw treatment for folate...cause we will be doing that actually..she was a low positive for blocking antibodies or something like that. Also is the camel farm you got yours from..one that abides by a Dr. Millie Hinkle standards? thank you!!Donnanoreply@blogger.comtag:blogger.com,1999:blog-3870724569005621487.post-51787725541818869892012-03-18T19:10:13.126-04:002012-03-18T19:10:13.126-04:00Yes, you can still get camel milk, in fact, there ...Yes, you can still get camel milk, in fact, there is more than enough right now, babies are being born, milk is increasing with the weather change, all is good!! There are a few great farmers to choose from. If we have no issues with folate receptor antibodies, you better believe we will go back on it!! The nutrition alone is well worth it. =)Jessicahttps://www.blogger.com/profile/01900390957087776716noreply@blogger.comtag:blogger.com,1999:blog-3870724569005621487.post-63559641433404981552012-03-18T17:21:31.076-04:002012-03-18T17:21:31.076-04:00no...im not a FB member yet..i will look more now ...no...im not a FB member yet..i will look more now to see how to be..thank you so kindly for responding so quickly to my post!! i appreciate that so much... we actually just had that folate test done ourselves and got our labs tests back a few weeks ago..and so curious about the camel milk and if your still able to get it...the article in the autism file makes it sound like its not easy. Will you go back on it?Donnanoreply@blogger.comtag:blogger.com,1999:blog-3870724569005621487.post-30360913739595900292012-03-18T16:23:38.475-04:002012-03-18T16:23:38.475-04:00Donna,
Have you joined our FB group yet? It's...Donna,<br />Have you joined our FB group yet? It's called Healing with Camel Milk. All the info you could need is there! Our results came immediately on the milk, but the more lasting results came over time. Our younger son responded quicker and more intensely, our older son took time to respond, he was more of a steady responder though. We are not on the milk right now, we want to test our kids for the folate receptor antibodies. They were on it for 9 months before we took a break though! =)Jessicahttps://www.blogger.com/profile/01900390957087776716noreply@blogger.comtag:blogger.com,1999:blog-3870724569005621487.post-69611630767686447562012-03-18T15:56:10.331-04:002012-03-18T15:56:10.331-04:00Im just thrilled to come across your blog my accid...Im just thrilled to come across your blog my accident..ive been wondering about camel milk for about a month now.. and then all the sudden the new autism file came out last week with a huge article in it. Please..may I ask how soon you saw positives on the milk? and do you still use it now? also..dr hinkle..does she have a fee to talk to her on the phone up front and do you know the cost? thank you so much for blogging on this subject..been googling around each day trying to get as much info as i can!!Donnanoreply@blogger.comtag:blogger.com,1999:blog-3870724569005621487.post-59045438877559340872011-12-12T22:07:21.078-05:002011-12-12T22:07:21.078-05:00Casey,
So far I have always felt like the driving ...Casey,<br />So far I have always felt like the driving force behind healing my children. We know our children best and we know when they are off and need something different. I have come to grips with the fact that this responsibility is mine....meaning, I've stopped looking for a doctor to do it for me. I'm content with this now. If we ever run into anything out of my ballpark, I know there are doctors out there I can bring them to, but for the day to day victories, that is all me and I am proud to wear that title! =)Jessicahttps://www.blogger.com/profile/01900390957087776716noreply@blogger.comtag:blogger.com,1999:blog-3870724569005621487.post-43262615538733000352011-12-10T22:18:23.195-05:002011-12-10T22:18:23.195-05:00Yes Janice. Camel milk is nothing like cow's ...Yes Janice. Camel milk is nothing like cow's milk, they are not even in the same family and camel milk does not contain the beta-casein, which is what causes the opiate-effect with cow's milk. Allergies to camel milk are very rare.Jessicahttps://www.blogger.com/profile/01900390957087776716noreply@blogger.comtag:blogger.com,1999:blog-3870724569005621487.post-20803830315320614052011-12-10T16:31:45.201-05:002011-12-10T16:31:45.201-05:00Hi Jessica: Can children who are allergic to cow&...Hi Jessica: Can children who are allergic to cow's milk (casein) drink camel's milk?Janicehttp://www.crystalchild.wordpress.comnoreply@blogger.comtag:blogger.com,1999:blog-3870724569005621487.post-38948516711101640222011-12-06T22:19:29.543-05:002011-12-06T22:19:29.543-05:00Thanks Jessica, I will look into getting set up wi...Thanks Jessica, I will look into getting set up with Dr Woeller since he does Skype consultations. We have had some success with our DAN doctor but I have been the driving force behind most of the supplements the kids are on. We are at a low point since every time we think we are at a good baseline, something throws us off. I guess I just need help making sense of it all! We got our OAT test results back this week and the numbers are all over the place (which explains the regressions we've seen lately). Wouldn't it be nice if all doctors were experts in this stuff and we didn't have to play super sleuths to figure it out on our own? I guess I'm just venting at this point, ha!Caseyhttps://www.blogger.com/profile/13477976300026766137noreply@blogger.comtag:blogger.com,1999:blog-3870724569005621487.post-33222604903986476202011-12-05T20:49:35.462-05:002011-12-05T20:49:35.462-05:00Casey,
We have had four doctors along the way, thr...Casey,<br />We have had four doctors along the way, three DAN! and one homeopathic. In the beginning we consulted with Dr. Woeller for just about everything, plus we had a local DAN! to see for whatever he recommended. Once we got on the path we are on now and I had more confidence in what I was doing, I found that I needed them less and less. I never waited for them to make suggestions though, I am pretty much on top of all the natural treatments via my own research. I always give them the update when we see them, and they are satisfied with all that I do. I basically use them for testing now. With something like camel milk, which is a food, it's not necessary to involve a doctor, who hasn't even heard of it, although I do like to inform them of all the things we are doing.Jessicahttps://www.blogger.com/profile/01900390957087776716noreply@blogger.comtag:blogger.com,1999:blog-3870724569005621487.post-2276062763297427872011-12-05T19:25:03.096-05:002011-12-05T19:25:03.096-05:00Man, camel milk sounds like powerful stuff, I need...Man, camel milk sounds like powerful stuff, I need to figure out how to get some in FL. We are on a similar biomedical journey here with our two but you are WAY further along with getting everything figured out. I am impressed! We are loosely working with a DAN Dr but I have been playing Dr Google and am having a tough time with the trial and error. Do you guys work closely with a dr or are you figuring this puzzle out on your own? Thanks for all of the great info, it is nice to find someone going through similar stuff, even though I wish we didn't have to.Caseyhttps://www.blogger.com/profile/13477976300026766137noreply@blogger.comtag:blogger.com,1999:blog-3870724569005621487.post-11658058860983394872011-06-06T00:05:30.036-04:002011-06-06T00:05:30.036-04:00thank you jessica! I really appreciate you sharing...thank you jessica! I really appreciate you sharing your knowledge:)channanoreply@blogger.comtag:blogger.com,1999:blog-3870724569005621487.post-80401444689259420452011-06-04T12:29:41.175-04:002011-06-04T12:29:41.175-04:00Unfortunately, I don't know of anywhere that s...Unfortunately, I don't know of anywhere that sells online, although I know there is a farmer in Missouri who is shipping orders. His name is Sam Hostetter, I don't have his telephone number, but Millie Hinkle of CammelMilkUSA.com does. She welcomes phone calls to discuss the milk and to obtain farmer names. She may give you a closer farmer in PA, but he has a waiting list, so I would recommend specifically asking for Sam's number. I have to warn you though, it's about $250 to ship overnight!Jessicahttps://www.blogger.com/profile/01900390957087776716noreply@blogger.comtag:blogger.com,1999:blog-3870724569005621487.post-34102307070841593392011-06-03T23:10:10.596-04:002011-06-03T23:10:10.596-04:00do you know of anyplace online i can buy camel mil...do you know of anyplace online i can buy camel milk?<br />or have you heard of any in massachusetts?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3870724569005621487.post-14554780201741001632011-05-25T12:28:47.030-04:002011-05-25T12:28:47.030-04:00Thank you Marysue!!Thank you Marysue!!Jessicahttps://www.blogger.com/profile/01900390957087776716noreply@blogger.com